About Us


The International Waldenstrom’s Macroglobulinemia Foundation (IWMF) is a patient-founded and volunteer-led, nonprofit 501(c)(3) organization with an important mission: To offer mutual support and encouragement to the Waldenstrom's macroglobulinemia community and others with an interest in the disease; to provide information and educational programs that address patients' concerns; and to promote and support research leading to better treatments and ultimately, a cure.

The IWMF and its international Affiliates provide a wide variety of services to help patients and their caregivers understand and cope with WM. These include a network of Support Groups, our Internet group discussion forums, our volunteer-based telephone and email LIFELINE, and our quarterly magazine, the IWMF Torch.

We offer Information Packets (Info Paks) for patients and for medical professionals that have been designed to provide very readable information about WM and about membership in the IWMF. Info Paks are available free of charge and can be immediately downloaded from our website or mailed upon request through our website or through our Office.

We encourage WM patients and caregivers to attend our annual Educational Forum, which provides a unique opportunity to hear about the latest research and treatments in WM. It’s also a great way to network with other patients. The Educational Forum happens every spring and rotates to various regions around the US. Several of our Affiliates also hold periodic country-specific educational forums.